Thursday, August 2, 2018

MRI results are in. Horatio sucks.

We met with my oncologist this afternoon for the results of my latest MRI and it didn't go as well as I'd hoped it would have. Horatio keeps growing and is just being a fucking dick. But here's the bigger problem, treatment options available to me at this time. Pull up a seat and grab a cold drink and let me explain.

At both my surgical consult and medical oncology appointments earlier this year I was told the following. First that it wouldn't benefit me to operate because the risks far outweigh the benefits. Also, because I had 5 weeks of radiation in 2014 it would be too soon to have any radiation again, hence the reason they moved me to medical oncology. And here is the pickle. I'm not compatible with the drug du jour, Temodal.

So at my last appointment when I raised my concerns over my incompatibility to the drug I was told there are other chemo options other than Temodal, to which I said that though I wasn't too thrilled about chemo as an option I'd be willing to listen and go home and study up on stuff if needed. But back to today. A resident came in to give me the news that Horatio is being a dick. I give her kudos too because she asked me for my permission if I wanted to see the photos, she must have been taking notes last time.

After checking out the bastard I informed her of my choice: Cannabis oil. I said, "look. I've tried surgery, I've done 5 weeks of radiation, I even tried a chemotherapy that I wasn't compatible with, now I'd like to try cannabis oil." I asked if my Dr wrote medicinal marijuana prescriptions and she said she'd ask. He doesn't. He said there is no science supporting it that would support him writing a prescription for it but that he'd refer me to the cannabis clinic in my city should that be my choice of "treatment". 

Now I realize that marijuana will be legal here come October 17 and therefore I won't need a medical license, but considering the hubby's drug company will be partnering with our pharmacy to cover it, that would greatly lessen the financial burden on us. We've talked a lot lately. I'm hoping I get a meeting with the cannabis clinic and can get a license, otherwise, we'll try and figure out how to pay for the oil. But in our discussions, we've touched on the reality of the situation and we have a mutual understanding that I'd rather have 5 good years versus 10 shitty years taking chemotherapy.

 But fear not cruel world.  I'm not rolling over just yet. The plan is to make a solid plan and stick with it. A strict gym schedule and I need to get back into ketosis. I don't care what my doctors say, I felt the best when I was in ketosis. And hopefully, we can afford cannabis oil as well. My Dr said he wants to bring me in for scans every 3 months and to contact them asap if I experience any symptoms that would indicate Horatio is trying to kill me. Okay, those are my words and not his. lol But please send your good mojo my way, because I need it.

~T




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